August 4, 2005

Charlie has been feeling lousy lately. The immunoglobulin on Monday + benedryl made him sleepy and grumpy. Tuesday was still the pits and his leg hurt from the catheter. The catheter that they put in his leg was starting to become infected. It took all day for them to do anything about it. The nurse calls a doctor, after a few hours a doctor shows up, the nurse explains the situation and the doctor says, “I’ll have to ask.” Then, a few hours after that, another doctor shows up and says, “OK, we better get this taken care of.” Then leaves it up to the nurses to take care of it. They put an IV into his right hand and took the catheter out of his leg. They may also move him to the floor tomorrow. He will still have the IV, but will be able to walk around with it when his leg feels better.

Charlie is now listed for heart transplant. Because he is dependent on the milrinone, it puts him at the top of the list for a heart. Could be anytime!